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Helpful Independent Resource for Department of Developmental Services (DDS),
MassHealth, and Waiver Services

An independent resource simplifying regulations, rights, and programs for adults with intellectual & developmental disabilities.

Accessibility Navigator is a fully independent, plain-language platform built to decode complex systems like Massachusetts Department of Developmental Services (DDS), MassHealth, and waiver services—so you can focus on making informed, confident decisions.

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Mission

Helping families and providers navigate the Massachusetts DDS and MassHealth system clearly, confidently, and with the dignity every adult deserves. If you find the content helpful, consider supporting us through responsible ads, sponsorship, or direct collaboration.

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Understanding Guardianship in Massachusetts

Guardianship is a legal process where a court appoints an individual to make personal, medical, or financial decisions on behalf of another adult who is deemed incapacitated. Below, explore the different types of guardianship and their legal process in Massachusetts.

Guardianship Icon

CLICK below to learn more about Rogers Guardianship or Standard Guardianship

What is Rogers Guardianship?

A Rogers Guardianship allows a court-appointed guardian to approve the use of antipsychotic medications or other extraordinary medical treatments for an incapacitated individual. This is only granted when the court determines the treatment aligns with the individual's best interest and their likely preferences.

Key Steps in the Rogers Guardianship Process

  • 1File a Petition – A healthcare provider submits a request to the Probate and Family Court.
  • 2Medical Evidence Required – A psychiatrist or physician must provide medical affidavits supporting the need for treatment.
  • 3Appointment of a Guardian ad Litem (GAL) – The court assigns a GAL to investigate the case and ensure the individual's rights are protected.
  • 4Substituted Judgment Hearing – The court decides whether the individual, if competent, would have consented to the treatment.
  • 5Court Oversight – The guardian must submit annual reports on the individual's condition and treatment.

What Makes Rogers Guardianship Unique?

  • ⚖️Strict Court Oversight – Unlike standard guardianship, ongoing judicial approval is required.
  • 🎯Applies Only to Extraordinary Treatments – Regular medical decisions do not require Rogers guardianship.
  • 🛡️Protects Individual Rights – The court ensures decisions align with the person's historical values and beliefs.

What is General Guardianship?

Standard Massachusetts Guardianship is granted when an individual is deemed incapacitated and unable to manage personal, medical, or financial decisions. The court assigns a guardian who acts in their best interest while considering their personal preferences.

Types of Guardianship

  • 📋Plenary Guardianship – Full authority over personal, medical, and financial decisions.
  • 📄Limited Guardianship – Authority is restricted to specific decisions (e.g., healthcare but not finances).
  • Temporary Guardianship – Short-term guardianship granted during emergencies.

How to Apply for Guardianship in Massachusetts

  1. 1File a Petition at the Massachusetts Probate and Family Court.
  2. 2Provide Medical Certification – A licensed physician must submit an Incapacity Evaluation Form.
  3. 3Court Appoints a Guardian ad Litem (GAL) – They investigate and provide a report on the individual's best interests.
  4. 4Guardianship Hearing – The judge reviews evidence and determines the scope of guardianship.
  5. 5Ongoing Oversight – Guardians must file annual status reports to the court.

Alternatives to Guardianship

Before seeking guardianship, consider less restrictive options:

  • 🏥Health Care Proxy – Allows a chosen individual to make medical decisions.
  • 💼Power of Attorney – Grants authority over financial matters.
  • 🤝Supported Decision-Making (SDM) – The individual retains decision-making power but receives structured guidance.

Sample Individual Goal: Communication

Goal Setting Icon

This is a realistic example of a goal approved by DDS for individuals receiving Community-Based Day Supports (CBDS) or Day Habilitation services. Goals are written to be person-centered, measurable, and reviewed as part of the Individual Support Plan (ISP) process.

Primary Communication Goal

Demonstrate the ability to communicate wants, needs, and preferences using verbal or non-verbal methods during daily activities with minimal prompting.

Measurable Objectives

  • Daily Activity Requests: During daily scheduled activities, the individual will request a preferred item or activity using a speech-generating device, picture card, or verbal expression, with no more than 2 verbal prompts, at least 3 times per week.
  • Social Interaction Response: When addressed by peers or staff, the individual will respond to simple social questions (e.g., "How are you?" or "What do you want to do next?") using a verbal or alternative communication method, with gestural support as needed, 4 times per week.
  • Emotional Expression: The individual will use a feelings chart, mood board, or verbal response to identify and express emotional states (e.g., happy, upset, tired) when prompted during routine check-ins, at least twice per week.

Implementation Timeframe

Review Schedule: Objectives will be reviewed quarterly by the interdisciplinary team. Adjustments will be made as needed based on data trends, therapeutic recommendations, or changes in individual needs or preferences.

Data Collection Methods

Data will be collected by DSPs using daily tracking sheets and narrative notes. Staff will document the communication method used, the number of prompts required, and any environmental/contextual factors influencing the interaction.

  • Objective-specific daily checkboxes with comprehensive notes section
  • Monthly summaries completed by the Developmental Specialist or assigned clinical staff
  • Collaborative documentation with Speech-Language Pathologist or OT when applicable

Progress Interpretation Framework

Progress is measured through consistency, generalization, and decreased reliance on prompts. Skills are considered emerging, maintained, or regressed based on quarterly data analysis.

  • Emerging: Individual demonstrates skill inconsistently, requiring frequent prompts and supports
  • Maintained: Individual consistently demonstrates skill with minimal prompting across settings
  • Regressed: Individual requires increased support compared to previous assessment period

If objectives are not being met over two consecutive quarters, a comprehensive team review will be conducted to modify strategies, supports, or goals as appropriate.

Person-Centered Approach: All goals are designed to enhance independence, dignity, and quality of life, and are updated annually or as the individual's needs, preferences, and circumstances evolve.

DDS & MassHealth Compliant Goal Structure

Service Activities Overview

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Click each button below for an overview of the service activities, including the metrics and parameters guiding them.

  • Structured skill-building programs (e.g., communication, daily living skills)
  • Therapeutic services (Occupational, Physical, Speech therapy)
  • Nursing supervision and health management
  • Behavioral support and positive behavior plans
  • Personal care assistance (e.g., toileting, feeding)
  • Community volunteering opportunities (e.g., food banks, animal shelters)
  • Educational and enrichment outings (libraries, museums)
  • Recreational and social activities in integrated settings
  • Public transportation and community navigation training
  • Money management, shopping, and independent living skills practice
  • Job coaching and ongoing employment support
  • Vocational assessments and employment planning
  • Job shadowing and internship opportunities
  • Work skills training (punctuality, teamwork, communication)
  • Support transitioning from group employment to independent jobs

Human Rights & Program Satisfaction

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Every individual in a Massachusetts DDS day program has fundamental rights to dignity, respect, and person-centered services. These rights are protected through comprehensive regulations, oversight mechanisms, and accountability measures designed to ensure quality care and meaningful outcomes.

Source index for DDS regulations: DDS 115 CMR (official).

👤

Individual Rights & Advocacy

Your voice, your choices, your rights

📋 Individual Support Plan (ISP) Rights

Your ISP is developed with your input and serves as the foundation for all services. This plan reflects your goals, preferences, and support needs while ensuring your voice is heard.

  • Participate actively in your ISP meeting and decision-making process
  • Invite family members, friends, or advocates to support you
  • Request changes to goals or services at any time during the year
  • Receive services that align with your cultural background and personal values

Cited regulation: 115 CMR 6.00 (overview), §6.23 Development of ISPs.

🔄 Right to Change Programs

If your current program no longer meets your needs or preferences, you can explore and transition to different providers or services with your team.

1 Contact your DDS Service Coordinator to discuss your concerns
2 Review available provider options in your area
3 Schedule site visits to explore new programs
4 Work with your team to complete transition documentation

Related guidance: DDS Office of Human Rights.

🤝 Advocacy Support Resources

DDS Service Coordinator

Your primary contact for service planning and concerns

Human Rights Officer

On-site advocate for rights protection and complaint resolution

Disability Law Center

Independent legal advocacy and rights protection services

Independent Living Centers

Peer support and self-advocacy skill development

Overview of safeguards: DDS Human Rights Resources (PDF).

🏢

Provider Standards & Oversight

Ensuring quality, safety, and compliance

⚖️ Human Rights Infrastructure

DDS-approved providers must maintain robust human rights oversight through designated personnel and established committees.

Human Rights Officer (HRO)
  • On-site monitoring of rights compliance
  • Investigation of concerns and complaints
  • Staff and participant rights education
  • Direct liaison with participants and families
Human Rights Committee
  • Review behavioral support plans with restrictive interventions
  • Monitor incident reports and corrective actions
  • Investigate allegations of abuse, neglect, or violations
  • Ensure ongoing compliance with DDS regulations

Cited regulation: 115 CMR 3.09 Protection of Human Rights / Human Rights Committees (PDF).

📚 Staff Training Requirements

All direct support staff complete required training tied to dignity, human rights, documentation, crisis response, and reporting.

🚨 Abuse & Neglect Recognition

Identifying signs and mandatory reporting procedures

📋 Human Rights Regulations

Understanding DDS and federal compliance requirements

🤝 Crisis Intervention

De-escalation techniques and emergency response protocols

📊 Documentation Standards

Proper record-keeping and incident reporting

Related standards: 115 CMR 5.00 Standards to Promote Dignity (PDF).

📋 Accountability Measures

Quarterly Internal Audits: Systematic review of compliance with human rights standards
Record Retention: Six-year minimum retention of human rights documentation
Mandatory Reporting: Immediate notification to DDS of rights violations
Corrective Action: Structured improvement plans for compliance deficiencies

See: 115 CMR 5.00 (PDF) and 115 CMR 3.09 (PDF).

📈

Quality Assurance & Satisfaction

Measuring progress and ensuring excellence

🎯 Goal Development & Progress Monitoring

Every individual's ISP includes measurable goals that reflect personal priorities and growth opportunities. Progress is continuously monitored through data collection and regular team reviews.

📊
Data-Driven Approach

Consistent data collection and analysis to track meaningful progress toward goals

🔄
Flexible Goal Adjustment

Goals can be modified based on progress, preferences, or changing circumstances

👥
Collaborative Review

Regular team meetings involving the individual, family, and support professionals

Cited regulation: 115 CMR §6.23 (ISP development).

📝 Annual Satisfaction Assessment

Providers gather feedback from participants and families about service quality and effectiveness, and integrate it into continuous improvement.

Service Quality
  • Staff competency and professionalism
  • Program activities and engagement
  • Safety and environment
  • Communication and responsiveness
Personal Outcomes
  • Goal achievement and progress
  • Skill development and independence
  • Community integration opportunities
  • Social relationships and connections

Related standards: 115 CMR 5.00 (PDF).

🌟
Continuous Improvement Commitment

Satisfaction feedback informs service improvements, staff training priorities, and program enhancements to ensure person-centered excellence.

For crisis/ restraint review requirements, see 115 CMR 5.00 (PDF) and §5.11 Crisis Prevention, Response, and Restraint.

Sample Case Studies

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Click on a case study below and explore our collection designed to illustrate common experiences and pathways within Massachusetts' DDS and MassHealth DH services. These scenarios are based on typical interactions and situations encountered in the field, providing insights into the processes of Day Habilitation, CBDS, and transportation services. It's important to note that these case studies are fictionalized representations and do not reflect any specific individuals or confidential information. They serve as educational tools to help individuals, caregivers, and providers better understand the complexities and possibilities within these essential service systems.

The Quest Begins

Mary, a 21-year-old student, is preparing to transition out of her specialized educational program, which extended her high school experience from ages 18 to 22 with continued training and supports. As she approaches her 22nd birthday in three months, she and her Independent Educational Plan (IEP) team must explore and identify a suitable Day Program that aligns with her goals, interests, and support needs.

While she has met some local providers at a **Transition Fair** hosted by her high school, the Department of Developmental Services (DDS) has also provided her and her guardians with an extensive list of additional providers. To ensure a smooth transition, her team must coordinate program visits, assess available services, and determine the best fit for her long-term success.

The Approach

With the information gathered from the Transition Fair and recommendations from DDS, Mary’s guardians coordinated tours of five different Day Programs. During each visit, she had the opportunity to observe program activities, interact with staff and participants, and assess the level of support offered.

After careful consideration and discussions with her team, Mary selected a program that offered a **comprehensive blend of services** tailored to her needs, including:

  • **Day Habilitation (Day Hab):** Therapeutic supports focused on skill development and personal growth.
  • **Community-Based Day Supports (CBDS):** Engaging activities that promote independence and community integration.
  • **Group Employment:** Structured employment opportunities with job coaching support.

Transportation Solution

To facilitate a smooth transition, her family secured **PT-1 transportation approvals** for travel to and from her **Day Habilitation program**. Additionally, **DDS-funded transportation** was arranged for **community outings and employment-related activities**, ensuring that Mary had reliable access to all aspects of her chosen program.

The Reward

Mary successfully adjusted to her new program, gradually building confidence, social connections, and practical skills. The combination of services provided her with **a structured yet flexible environment**, enabling her to develop greater independence and actively participate in her community.

Through **CBDS and Group Employment**, she engaged in meaningful activities, learned job-related skills, and established **natural support systems** within her community. Her transition highlights the importance of early planning, informed decision-making, and personalized programming in supporting young adults as they move from school-based services into adult disability services.

The Quest Begins

Carlos, a 43-year-old individual with an intellectual disability, had a strong desire to enter the workforce but faced significant challenges in accessing job training and securing employment. While his Community-Based Day Supports (CBDS) program provided social and vocational activities, Carlos and his team recognized the need for additional structured employment services.

Working collaboratively, his Day Program submitted a Service Change Form to the Department of Developmental Services (DDS) to request Independent Employment hours, ensuring Carlos could receive the necessary support for job placement and retention.

The Approach

Carlos continued participating in his CBDS program while also transitioning into employment-focused training through Independent Employment hours. His individualized employment plan included:

  • Job shadowing to observe various workplace environments.
  • Resume-building workshops and interview preparation sessions.
  • Volunteering and hands-on job skills training.
  • Comprehensive career assessments and exploration.
  • Supported employment opportunities tailored to his strengths and interests.

To enhance his transition, Carlos worked closely with Job Developers and Job Coaches throughout the week, refining his workplace skills, building confidence, and preparing for the demands of an independent job setting.

Transportation Solution

Transportation was a key component of Carlos' employment plan. Through a DDS-funded provider, he received dedicated transportation services to ensure he could reliably attend job interviews, vocational training sessions, and ultimately, his new workplace.

Additionally, he met regularly with a Job Developer or Job Coach, who provided ongoing support during job interviews, the hiring process, and onboarding at his new workplace.

The Reward

After six months of intensive training and coaching, Carlos successfully secured a part-time job in a supportive work environment. With continued job coaching, he has gained independence, improved his workplace skills, and achieved greater financial stability. His success highlights the effectiveness of CBDS-to-Independent Employment transitions, reinforcing the value of structured support in helping individuals with disabilities achieve their career goals.

The Quest Begins

Susan, a 58-year-old individual, requires a higher level of care than her current day program can provide. She has medical needs, including a feeding tube that requires nursing oversight, and requires ADL (Activities of Daily Living) support using a Hoyer lift for safe transfers. Given these needs, Susan and her guardian have agreed to explore Full-Time Day Habilitation (FTDH) programs that can better support her daily care and enhance her overall well-being.

The Approach

With guidance from her care team and guardian, Susan toured several FTDH programs, prioritizing options that provide:

  • On-site nursing support for medical needs, including feeding tube care.
  • Proper ADL assistance, including a Hoyer lift for safe transfers.
  • Structured daily activities tailored to her interests and abilities.
  • A safe, engaging environment with individualized care.

Transportation Solution

Susan's transportation is coordinated through a PT-1 authorization, ensuring reliable access to and from her new FTDH program.

The Reward

Susan successfully transitioned to a Full-Time Day Habilitation program that meets her medical and personal care needs. With appropriate nursing support, ADL accommodations, and engaging activities, she can enjoy a fulfilling daily routine in a safe and supportive environment.

The Quest Begins

Billy is a 21-year-old student preparing to exit his school district’s special education services under the 688 transition plan. He has a documented intellectual disability and a history of high-risk behaviors, including episodes requiring physical restraints at school. With just three months until he turns 22, his IEP team, guardians, and DDS Service Coordinator are working to find a Day Program that can safely continue the behavioral supports and progress already achieved in school.

The Approach

The IEP team coordinated with multiple Day Habilitation providers offering behavioral clinical support and low staff-to-individual ratios (1:1 or 1:2). Billy toured two facilities with his guardian and school liaison. He connected positively with a Developmental Specialist and expressed interest in activities involving physical movement and puzzles.

  • Recommended service model: Full-time Day Habilitation with limited CBDS hours as tolerated.
  • Program committed to following existing behavior support plan and crisis de-escalation strategies.
  • Behavior clinician will be on-site for at least 15 hours per week with quarterly data reviews.

Transportation Solution

Due to his behavior history, Billy is eligible for supervised, DDS-funded transportation. A specialized provider with trained escorts was selected.

The Reward

Billy began transitioning gradually into the program with a 1:1 DSP and consistent visual schedules. Over time, his outbursts decreased and he began using his coping tools. Quarterly reviews show significant stability and increased participation in structured CBDS activities. The team is now exploring adding music-based group sessions to support his regulation and communication.

The Quest Begins

Sarah, a 34-year-old woman who uses a power wheelchair independently, currently volunteers at a community library and is eager to take the next step toward paid work. She is looking for a DH and CBDS program that will support her employment goals, offer accessible social activities, and help her meet new friends. She lives at home with supportive parents and uses PT-1 transportation.

The Approach

Sarah and her family worked with a DDS Job Developer to tour 3 DH and CBDS programs with employment groups and strong community inclusion. Her chosen provider offered:

  • Small group employment pathway with resume-building workshops and mock interviews.
  • Integrated social events like interactive games, coffee outings, and movies.
  • Job coaching support and access to an adaptive technology specialist.

Transportation Solution

Sarah continues to use PT-1 transportation. Her job coach can meet her directly in the community when needed when out during CBDS hours. She will also be provided transportation from the Job Coach to her group supported employment.

The Reward

Sarah recently secured a part-time job at a local library and continues attending her CBDS program 3 days per week. She is part of a group site developed by the program that includes peers that wanted to work in the library. She’s made new friends through group activities and even helped launch a “Book Club Fridays” session. Her program staff report she is thriving socially and gaining confidence.

The Quest Begins

Janice is a 45-year-old woman currently enrolled in a Full-Time Day Habilitation program that offers only limited community engagement. She enjoys bowling, mini golf, and visiting museums but feels stuck in a daily routine of in-building activities. She and her guardian approached DDS requesting a new program with greater community access and fun outings.

The Approach

Janice toured two blended programs offering both Day Hab and CBDS hours. She chose one that offers:

  • Daily community integration: CBDS hours every afternoon.
  • A rotating activity calendar with museum trips, game days, and social outings.
  • Flexible support staff to assist with planning and transitions.

Transportation Solution

PT-1 and DDS-funded community transportation were authorized, including mileage to off-site activities.

The Reward

Janice is now accessing the community 4 out of 5 days per week. Her weekly highlights include art museum visits and bowling with peers. She continues to receive therapeutic supports in the morning through Day Hab. Her happiness and attendance have significantly improved.

The Quest Begins

Kelvin, a 58-year-old man with no medical needs, is seeking a CBDS-only program that allows him to avoid being inside a facility altogether. He enjoys fishing, going to the gym, and being outdoors. He lives independently and requested a program that offers a “without walls” model where participants go straight into the community.

The Approach

Kelvin and his DDS Service Coordinator toured 3 programs offering community-based services. One provider stood out by offering:

  • Transportation directly from home into daily outings (e.g., parks, gyms, libraries).
  • No building-based time—staff clock in/out with participants in the field.
  • Fishing trips, gym memberships, and peer-led recreation groups.

Transportation Solution

The program coordinates DDS-funded pickup and drop-off directly from Kelvin’s home, aligning with his goals of avoiding buildings entirely.

The Reward

Kelvin reports improved mood, physical health, and enjoyment. His week includes gym workouts, fishing spots, and small groups of friends with shared interests. He is a strong advocate for this model and now helps new program participants learn the ropes.

The Quest Begins

Laura, a 70-year-old woman experiencing early dementia symptoms, is looking for a safe, part-time Day Habilitation program. She enjoys arts & crafts, Bingo, and dancing while seated (chair Zumba). Her family wants to maintain her social skills and prevent isolation while ensuring safety and support for memory loss.

The Approach

Laura’s guardian worked with DDS and the Aging & Disability Resource Center to identify a program that offers:

  • FTDH with a specialized memory-care track and dementia-informed staff.
  • Two-day attendance with activities focused on sensory stimulation and safe engagement.
  • Small-group crafts, games, and accessible fitness opportunities.

Transportation Solution

PT-1 transportation was authorized for two days per week with wheelchair-accessible service and caregiver assistance.

The Reward

Laura is now attending her FTDH program every Tuesday and Thursday. She looks forward to Bingo, crafts, and social lunches with peers. Her family reports improved mood, cognitive engagement, and peace of mind knowing she is in a dementia-aware environment.

The Quest Begins

Robert, a 33-year-old male, is currently in a CBDS-only program. However, due to recent medical changes, he now requires consistent OT and PT services. His care team determined that a blended program with both CBDS and Day Habilitation hours would better meet his ongoing therapeutic and support needs.

The Approach

Robert's team submitted a program change request through DDS and explored local blended programs offering:

  • Licensed therapists on staff for ongoing OT/PT needs.
  • Daily skill-building activities under Day Hab services.
  • Community engagement hours through CBDS.

Transportation Solution

PT-1 transportation was approved to and from the new program five days per week, with additional community-based mileage funded through DDS for CBDS activities.

The Reward

Robert now receives consistent therapy and is showing improved functional gains. He participates in a daily walking group and enjoys painting during CBDS time. His ISP team has noted better mood and progress toward mobility goals.

The Quest Begins

Jennifer has been volunteering successfully but her current program lacks active job coaches due to staffing shortages. Her DDS team decided it's time to help her access a more supportive setting focused on group-supported employment opportunities.

The Approach

Jennifer and her guardian met with programs offering:

  • Active job developer and group employment placements.
  • Structured volunteering hours as a job-readiness path.
  • Weekly job coaching and soft skills support.

Transportation Solution

Jennifer’s new program arranged PT-1 to support in-building services.

The Reward

Jennifer now works twice a week with a group at a local animal shelter. Her job coach reports she is thriving and expressing readiness for more independence.

The Quest Begins

Sammy recently moved to Massachusetts from a state with limited adult services. She is looking for a Full-Time Day Habilitation (FTDH) program where she can work on her walking gait with PT and continue communication goals with speech therapy.

The Approach

Sammy and her guardian explored programs offering:

  • Daily PT and SLP services onsite.
  • Recreational activities like puzzles and painting.
  • Structured peer interaction in social groups.

Transportation Solution

Sammy was approved for PT-1 rides to the FTDH program.

The Reward

Sammy is now walking longer distances with PT support and participating in social activities, including painting groups and Bingo. Her speech therapist reports progress on articulation goals.

The Quest Begins

Bran, age 44, refuses to attend or participate in his current CBDS program. He frequently expresses dissatisfaction and paranoia, sometimes becoming aggressive. His guardian and DDS team agreed it is time to transition him to a more structured, therapeutic Full-Time Day Habilitation (FTDH) program.

The Approach

Bran’s team toured programs offering:

  • Full-time Day Hab with behavioral clinician onsite.
  • 1:1 staffing during adjustment period.
  • Activities tailored to Bran’s interests to build trust.

Transportation Solution

Due to safety concerns, a specialized DDS transportation vendor with trained escorts was arranged. No CBDS hours are used currently.

The Reward

Bran has begun to attend with improved consistency. His clinician has identified preferred calming activities, and data shows reduced incidents of aggression during structured routines.

The Quest Begins

Bri is a 28-year-old woman who enjoys using social media but lacks safety awareness online. Her guardians requested a CBDS program focused on technology safety, peer relationships, and boundaries. They do not want her working until she demonstrates improved judgment and digital safety.

The Approach

Bri toured CBDS-only programs offering:

  • Weekly lessons on online safety and digital citizenship.
  • Small peer discussion groups on boundaries and friendships.
  • Volunteering in a group setting to build social confidence.

Transportation Solution

PT-1 transportation was approved completed by the new day program.

The Reward

Bri is now demonstrating better online habits and seeks adult guidance when unsure. She participates in group discussions on boundaries and is building peer connections through volunteering at a senior center.

The Quest Begins

Paul is a 41-year-old male with chronic pain and a G-Tube. He is NPO and reacts strongly to food smells, often becoming aggressive or engaging in SIB. He has attempted to drink unsafe liquids and requires 1:1 eyes-on supervision at all times.

The Approach

His team is seeking a new program offering:

  • Strict protocol adherence for G-Tube feedings.
  • BCBA support and behavior data tracking.
  • Staff consistency and low exposure to food items during the day.

Transportation Solution

Paul’s new program arranged trained transportation aides through a PT-1.

The Reward

Paul has shown reduced aggression and reports feeling calmer. He enjoys individualized sensory activities and has expressed appreciation for a quieter space.

The Quest Begins

Cathy is a cheerful 33-year-old woman who enjoys child-like play and frequently brings toys to program. Her team would like her to expand into more age-appropriate activities while supporting her social growth.

The Approach

Cathy’s ISP team sought a Full-Time Day Hab (FTDH) program with:

  • Gentle exposure to adult social groups and interests.
  • Support for self-expression in a safe, nonjudgmental setting.
  • Structured, exploratory activities focused on peer engagement.

Transportation Solution

Cathy’s PT-1 rides was submitted by her new program and approved.

The Reward

Cathy is now participating in music and crafting clubs. She enjoys telling staff about her day and has started initiating conversations with new peers.

The Quest Begins

Bret engages in head-hitting SIB behaviors when upset and has a protocol involving helmet use. His team believes that a more engaging schedule will help reduce triggers and self-injury episodes.

The Approach

Bret toured Day Habilitation programs with:

  • Smaller groups and low-noise environments.
  • Staff trained in ABA and SIB redirection strategies.
  • Activity choice boards with clear visual supports.

Transportation Solution

Transportation included staffed that were trained on his Behavioral Plan approved through a PT-1.

The Reward

Bret now participates in a daily drumming group and sensory crafts. His incidents of head-hitting have decreased, and he wears his helmet less often.

The Quest Begins

Sal is relocating to a new group home and can no longer commute to his current day program. He is seeking a blended CBDS and Day Hab program close to his new residence and needs a gradual transition schedule.

The Approach

His team created a soft-start plan and toured programs offering:

  • Progressive weekly attendance increase from 2 to 5 days.
  • Peer mentor assignments to help him adjust.
  • Dedicated support for building peer relationships.

Transportation Solution

PT-1 arranged transportation with coordination with the group home on pick up and drop off times.

The Reward

Sal has begun making friends and participates in board game groups. He now attends 5 days a week and no longer clings to staff for social comfort.

The Quest Begins

Kelly, age 63, exhibits attention-seeking behaviors and emotional dysregulation. Her current program is not supportive, and she is unaware that peers often bully her. Her team agrees that a fresh start after 15 years is needed.

The Approach

Her team found a blended program offering:

  • Social coaching and emotional expression activities.
  • Bullying prevention and staff-led peer modeling.
  • Rotating weekly activities to maintain engagement.

Transportation Solution

Kelly’s PT-1 rides continued uninterrupted with her new route updated through MassHealth.

The Reward

Kelly has made new friends and enjoys staff-led yoga and journaling groups. She reports feeling happier and more included at her new program.

The Quest Begins

Carol enjoys cooking and baking but her current program cut those activities due to staffing. The daily schedule has become repetitive and lacks enrichment. Her team is searching for a CBDS/DH program that supports her hobbies and adds variety.

The Approach

The team explored programs offering:

  • Hands-on cooking classes and food prep labs.
  • Volunteering in local kitchens and senior centers.
  • New weekly clubs and peer-led hobby groups.

Transportation Solution

Carol’s program submitted a PT-1 that was approved.

The Reward

Carol now bakes weekly with her peers and leads a snack group. She says the new activities make her feel proud and helpful.

The Quest Begins

Jose spends most of his time doing sensory-based activities, which he enjoys. However, his team is concerned about a lack of communication skill development and access to therapeutic services. His current program does not have OT, PT, SLP, or BCBA on staff.

The Approach

Jose’s team sought a program offering:

  • Therapists (SLP, OT, PT, BCBA) employed onsite with ongoing service delivery.
  • Structured sensory stations with communication goal prompts.
  • Social skills and AAC integration support.

Transportation Solution

Jose's new day program submitted a PT-1 that was approved and the new transportation provider was trained on his communication device.

The Reward

Jose now works with his SLP three times a week and is using picture cards to make snack and break choices. His sensory needs are still supported, but with more skill-building embedded throughout the day.

Turning 22 guide

Turning 22: Transition to Adult Services (Massachusetts)

Chapter 688 planning, DDS eligibility, and MassHealth Day Habilitation

“Turning 22” (Chapter 688) is the state’s planning process that helps students exit special education and move into adult services. It starts with a school-submitted Chapter 688 referral and continues with eligibility and program applications to the appropriate adult agency (e.g., DDS, MRC).

  • Purpose: Create an orderly planning process as school services end.
  • Who sends it: The school district submits the Chapter 688 referral; families/guardians sign.
  • What it triggers: Notifies adult agencies (DDS/MRC/MCB) to begin transition planning.
  • What it is not: It is not an application or a guarantee of services/funding — you still apply to the adult agency.
  • Deadline: The school must submit the referral at least two (2) years before graduation or before the student turns 22 — whichever comes first.
  • Unsure about appropriateness? Contact the MRC Disability Determination Division (listed on the DESE 688 page).
  • DDS eligibility (22+): Based on 115 CMR 6.00 (Intellectual Disability or certain Developmental Disabilities) and MA domicile.
  • Separate application: After the 688 referral, submit the DDS eligibility application and respond to requests for records.
  • Planning: If eligible, you’ll participate in DDS Individual Support Planning (ISP).
  • Program rules: Defined by 130 CMR 419.000 and the Day Habilitation Provider Manual.
  • Clinical eligibility & PA: Members must meet clinical criteria; providers obtain prior authorization at admission and periodically thereafter.
  • Rates: Established by EOHHS (see related sections on the 130 CMR 419.000 page).
  1. Confirm the Chapter 688 referral was sent ≥ 2 years before exit/22. Keep a copy.
  2. Submit your DDS eligibility application (if DDS is the right agency) and provide requested records.
  3. Meet the Transition/688 Coordinator and participate in planning.
  4. If Day Habilitation is appropriate, ensure the provider seeks MassHealth prior authorization and your MassHealth coverage stays active.
  5. Before school exit, confirm start dates (DDS supports and/or DH) to avoid gaps in weekday services.

ABA & Behavioral Supports in Massachusetts Adult Day Programs

In MA adult programs (Day Habilitation & CBDS), “behavior supports” are delivered by qualified clinicians and must be person-centered, least-restrictive, and rights-affirming.

How it’s used in adult programs

  • Day Habilitation (DH): Behavior services are documented in a Day Habilitation Service Plan (DHSP) built from a Service Needs Assessment (SNA). Prior authorization and DH regulations apply. MassHealth DH Manual · 130 CMR 419
  • Qualified staff: Programs may include a Behavioral Specialist or Psychologist on the team; staff qualifications are defined in 130 CMR 419.421. Read the rule
  • Rights & oversight: Positive Behavior Supports (PBS) are required; plans using restrictive procedures must be reviewed by a Human Rights Committee. 115 CMR 5.00 · 115 CMR 5.14

Common goals & limits

  • Build safety, communication, and independence with measurable goals and regular data reviews (least-restrictive first).
  • Evidence base: Strongest for children and youth; adult-specific research exists but is more limited, so plans must be individualized and outcome-focused. AHRQ topic brief · Adult interventions review
  • Ethics: Providers follow the BACB Ethics Code; services should be collaborative, respectful, and transparent. BACB Ethics Code
Perspective: Evidence & supporter view

Behavioral approaches (including ABA techniques) are widely used, with strong evidence in children for improving skills and reducing interfering behaviors; national bodies recommend evidence-based behavioral interventions as part of care.

Perspective: Concerns & self-advocate view

Some autistic people and advocates report harms from compliance-focused goals or insufficient attention to autonomy and sensory needs, and caution against efforts to make people “look non-autistic.” Modern practice emphasizes consent, dignity, and person-defined outcomes.

Quick questions to ask any provider
  • How are goals chosen with me/my guardian? Can we refuse goals?
  • What data will you collect, and how often will we review progress?
  • How do you ensure least-restrictive, rights-affirming supports?
  • When would you seek HRC review? Who explains that to me?
  • How will skills generalize to community settings I value?

Key Massachusetts & National Sources

This section is educational. Confirm program details with your provider and official state sources.

DDS Provider Audits: What to Expect

Whether you're a provider preparing for your next audit or a family curious about oversight practices, understanding DDS and MassHealth audit expectations can ensure transparency, safety, and high-quality services.

Audit Icon
  • Scheduled Surveys: DDS Survey & Certification visits occur every 1–2 years for licensed providers. Providers are notified in advance.
  • Unannounced Visits: MassHealth may conduct unannounced audits of Day Habilitation providers at any time under 130 CMR 419.000.
  • Individual Support Plans (ISPs) and all corresponding goal data and quarterly reviews.
  • Daily documentation: DHSP, SNA, therapy service logs, attendance records.
  • Incident reports: including investigations and resolutions.
  • Human Rights: Committee meeting minutes, behavioral plan approvals, grievance tracking.
  • Staff files: Training logs, background checks, certifications, abuse reporting training.
  • Transportation: PT-1 approvals, trip logs, vehicle inspections, driver training records.
  • Health & Safety practices: medication administration, emergency drills, infection control.
  • Human Rights implementation and HRC review evidence.
  • Community integration and ISP-aligned engagement activities.
  • Goal progress documentation and measurable objectives tracking.
  • Deficiency resolution through Corrective Action Plans (CAPs).
  • Review and update ISP documentation and data collection sheets.
  • Ensure attendance and therapy logs are complete and consistent.
  • Verify incident reports are up-to-date with follow-ups documented.
  • Conduct an internal Human Rights Committee audit.
  • Check that all staff files include recent CORI/SORI checks, MAP/CPR/FA certifications, and signed training logs.
  • Ensure transportation trip logs align with attendance and PT-1 authorizations.
  • Review quarterly progress notes and confirm all goals have measurable objectives with supporting data.
  • Conduct a mock audit or internal compliance review with your HRO or Program Director.
  • Review prior survey findings and ensure CAP items are resolved and documented.
  • Print key documents and organize digital backups in secure folders.
  • Step 1: Go to the DDS Survey & Certification Reports page.
  • Step 2: Search by provider name, city, or service type (e.g., Day Hab or CBDS).
  • Step 3: Review the most recent PDF report posted for that provider. These reports summarize how well the program met required health, safety, and service standards.
  • Step 4: Find both the licensing result and certification status in the report. These help indicate how compliant and reliable the provider is considered by DDS reviewers.
  • Step 5: If a provider receives lower marks, they may be reviewed more frequently, asked to make corrections, or even denied a license renewal.

Understanding the Licensing Levels

  • Two-Year License: Provider met all essential requirements and will be reviewed again in two years.
  • Two-Year with Mid-Cycle Review: Provider is generally strong but will be reviewed midway through the license term to follow up on specific issues.
  • Deferred License: Significant concerns were found. The provider must make improvements before a license decision is finalized.
  • Non-Licensure Recommended: Provider did not meet licensing standards. Services may be restricted or stopped unless corrections are made.

Certification Ratings by Service Area

  • Certified: The provider’s services met quality expectations for the specific service area reviewed (e.g., Day Habilitation, Residential, Employment).
  • Certified with Mid-Cycle Review: The service met general expectations, but follow-up is scheduled to monitor improvement areas.

💡 These reviews are public for transparency and can help individuals and guardians choose a provider that best meets their expectations. Always check when the last report was published and review trends across years.

New England DDS Office Comparison & Rankings

This region-wide comparison helps families and advocates understand how Massachusetts stacks up against its neighbors in key service areas like adult day supports, oversight, and staffing. Rankings are based on public data, regulatory review, and transparency.

How to Use This Guide

Click on any state to explore detailed information about its developmental disability services, strengths, weaknesses, and how you can advocate for improvements. All information is sourced from official state resources and advocacy organizations.

📊 Service Quality
🔍 Oversight & Transparency
⏱️ Wait Times & Access
💰 Funding & Resources
Rank #1
Massachusetts

Overview

Massachusetts has the most transparent and detailed oversight in New England for adult DDS-funded services. Public audits, licensing scorecards, and robust regulations like 130 CMR 419.000 support quality and rights.

What Massachusetts Excels At

  • Transparent Oversight: Public provider scorecards and detailed audit reports
  • Comprehensive Services: Day Habilitation and CBDS available statewide
  • Staffing Standards: 1:7 staff-to-participant minimum ratio for DH programs
  • Clinical Support: Programs required to offer ADL support and therapies
  • Human Rights: Robust HRC oversight and complaint systems

Areas for Improvement

  • ⚠️ Regional Disparities: Service quality varies between urban and rural areas
  • ⚠️ Transportation Gaps: Limited PT-1 availability in some regions
  • ⚠️ Workforce Shortages: High turnover among direct support professionals
  • ⚠️ Funding Constraints: Reimbursement rates lag behind rising costs

How to Advocate for Change

1
Contact Your Legislator

Find your state representative and senator using the official legislature website. Share personal stories about how services impact your family.

2
Join Advocacy Groups

Connect with organizations for collective advocacy efforts.

3
Attend Public Hearings

DDS and the legislature hold public hearings on budget and policy changes. Check the DDS events calendar for upcoming opportunities.

4
Participate in DDS Councils

Join your Regional Advisory Council to provide direct input to DDS leadership about local needs.

Rank #2
Rhode Island

Overview

Rhode Island has invested in person-centered planning and published extensive redesign plans for services. However, provider capacity and waitlists remain concerns.

What Rhode Island Excels At

  • Person-Centered Planning: Emphasis on individual goals and preferences
  • Supported Decision-Making: Progressive policies on alternatives to guardianship
  • Community Integration: Strong focus on community-based supports
  • Family Engagement: Active family involvement in service planning

Areas for Improvement

  • ⚠️ Provider Shortages: Limited number of qualified service providers
  • ⚠️ Waitlists: Significant delays for some services
  • ⚠️ Transparency: Less frequent public audit reports online
  • ⚠️ Rural Access: Services concentrated in urban areas

How to Advocate for Change

1
Contact State Officials

Reach out to your state representatives and senators to share your experiences and concerns.

2
Join Advocacy Networks

Connect with advocacy groups for collective action.

3
Participate in Public Forums

Attend BHDDH public forums and legislative hearings to provide input on service needs and policy changes.

Rank #3
Connecticut

Overview

Connecticut offers similar program types to Massachusetts but does not publish provider-level audit scores. Oversight is handled through internal DPH and DDS audits, but families report difficulty accessing information.

What Connecticut Excels At

  • Service Variety: DDS waivers support day programs, individualized budgets
  • Self-Determination: Strong emphasis on person-centered planning
  • Family Support: Robust family assistance programs
  • Transition Services: Comprehensive school-to-adult transition planning

Areas for Improvement

  • ⚠️ Transparency Issues: Audit and complaint findings not readily published
  • ⚠️ Access Challenges: Difficulty navigating complex service systems
  • ⚠️ Regional Disparities: Service quality varies significantly by location
  • ⚠️ Workforce Issues: High turnover and staffing shortages

How to Advocate for Change

1
Connect with Legislators

Contact your state representatives and senators to discuss service needs and policy concerns.

2
Join Advocacy Groups

Partner with organizations for stronger advocacy.

3
Request Public Records

Use Connecticut's Freedom of Information Act to request audit reports and other documents not readily available online.

Rank #4
Vermont

Overview

Vermont uses a designated agency model for DD services and has strong self-advocacy networks. However, some families report inconsistency in service quality by region.

What Vermont Excels At

  • Integrated Model: Collaboration between Mental Health & DDS
  • Self-Advocacy: Strong and active self-advocacy networks
  • Community Focus: Emphasis on community-based supports
  • Person-Centered: Individualized service planning

Areas for Improvement

  • ⚠️ Service Consistency: Quality varies significantly by region
  • ⚠️ Program Structure: Day programs are less structured compared to MA's clinical Day Habs
  • ⚠️ Rural Challenges: Limited services in rural areas
  • ⚠️ Workforce Shortages: Difficulty recruiting and retaining staff

How to Advocate for Change

1
Contact Your Representatives

Reach out to your state representatives and senators to share your experiences and concerns.

2
Join Advocacy Efforts

Connect with groups for collective advocacy.

3
Participate in Public Forums

Attend DVHA public forums and legislative hearings to provide input on service needs and policy changes.

Rank #5
New Hampshire

Overview

New Hampshire relies heavily on Area Agencies for service delivery. While this offers flexibility, oversight varies significantly and there are fewer centralized reports or scorecards.

What New Hampshire Excels At

  • Local Flexibility: Area Agencies can tailor services to local needs
  • Community Integration: Strong focus on community-based supports
  • Employment Services: Good supported employment programs
  • Family Support: Active family involvement in service planning

Areas for Improvement

  • ⚠️ Decentralized Oversight: Oversight varies significantly by region
  • ⚠️ Lack of Transparency: No published provider-level score reports
  • ⚠️ Inconsistent Quality: Service quality varies between Area Agencies
  • ⚠️ Funding Limitations: Limited resources for expanding services

How to Advocate for Change

1
Contact State Officials

Reach out to your state representatives and senators to discuss service needs.

2
Join Advocacy Networks

Connect with groups for collective advocacy.

3
Engage with Area Agencies

Participate in advisory boards and public meetings of your local Area Agency to provide direct feedback.

Rank #6
Maine

Overview

Maine offers strong community inclusion values but has faced serious federal scrutiny and consent decrees over lack of adequate services for individuals with ID/DD. Waitlists and service caps remain an issue.

What Maine Excels At

  • Community Inclusion: Strong values around community participation
  • Self-Advocacy: Active self-advocacy organizations
  • Person-Centered Planning: Individualized service approaches
  • Family Support: Dedicated family support programs

Areas for Improvement

  • ⚠️ Compliance Issues: Major compliance challenges and federal oversight
  • ⚠️ Long Waitlists: Longest adult day service waitlist in New England
  • ⚠️ Funding Constraints: Limited resources for service expansion
  • ⚠️ Workforce Shortages: Critical staffing shortages across the state

How to Advocate for Change

1
Contact State Leaders

Reach out to your state representatives and senators to advocate for increased funding and services.

2
Join Advocacy Efforts

Partner with groups for collective action.

3
Participate in Public Hearings

Attend DHHS public hearings and legislative sessions focused on developmental services to share your experiences and needs.

4
Engage with Federal Oversight

Given federal consent decrees, consider providing input to DOJ oversight regarding compliance and service improvements.

Regional Comparison at a Glance

State
Service Quality
Transparency
Access
Advocacy Strength
Massachusetts
High
High
Medium
High
Rhode Island
Medium
Medium
Low
Medium
Connecticut
Medium
Low
Medium
Medium
Vermont
Medium
Medium
Medium
High
New Hampshire
Medium
Low
Medium
Medium
Maine
Low
Medium
Low
High

Methodology & Sources

Rankings are based on analysis of state policies, service availability, oversight mechanisms, wait times, and transparency measures. Sources include official state websites, advocacy organization reports, federal oversight documents, and public data on service quality.

Key factors considered: service availability and quality, staffing standards and ratios, oversight and transparency, wait times, funding levels, and strength of advocacy networks.

This comparison is updated regularly to reflect changes in state policies and services. Last updated: April 2025.

Frequently Asked Questions

Massachusetts-specific information sourced from DDS, MassHealth, and the state’s Human Service Transportation (HST) program.

Question mark icon for Frequently Asked Questions

To apply for DDS services, you complete an intake to determine eligibility. You can start through the Executive Office of Health and Human Services Virtual Gateway or by contacting a DDS office. An Eligibility Specialist will review documentation (e.g., testing and diagnostic records) and guide you through the process.

DDS offers supportive, community living, and residential services (including provider-operated group homes and shared living) tailored through the Individual Support Plan.

  • Supportive Services: family/individual support, employment support, and day services.
  • Community Living Services: intensive family support and individual supports over 15 hours/week.
  • Residential Services: 24-hour models such as group homes and shared living.

MassHealth eligibility depends on factors like income, age, and disability. You can apply online, by phone, by mail, or at a MassHealth Enrollment Center.

Day Habilitation and Community-Based Day Supports focus on person-centered goals and may include:

  • Skill-building: communication, social interaction, and daily living tasks.
  • Community integration: volunteering, local outings, and social events.
  • Therapeutic support: OT, SLP, and PT (primarily in Day Hab).
  • Health and safety: personal care, nursing oversight, and behavioral supports.
  • Employment preparation: resume practice, job skills, and supported volunteer work.

Contact the DDS office that received your application; staff can confirm where your file is in the process and next steps.

For medically necessary rides covered by MassHealth, providers/clinicians submit a PT-1 request through the Human Service Transportation (HST) program. MART is one of the state’s regional brokers that schedules/assigns trips after approval.

Public Source References

Public Source References visual

The following official resources were consulted to ensure the accuracy and transparency of the information shared on this website. All content is independently written and designed to help families, caregivers, and professionals understand available services—not to replace official legal or clinical advice.

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Logo About This Project

This website was created and is maintained independently by JMC Resources as an educational project. It is designed to help individuals, caregivers, and professionals better understand the structure and availability of services offered through the Massachusetts Department of Developmental Services (DDS) and MassHealth.

Information is based on publicly available regulations, state-issued guidance, and fictional experiences in the field. This site is not affiliated with or endorsed by any government agency, provider, or company.

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